Aniridia Network Conference 2019

Saturday, 01 June 2019 9:30 AM - 5:30 PM [GST]

138, Digbeth, Birmingham, England, B5 6DR, United Kingdom

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Child Partial Approval - £8.50

For 0 - 16 year olds

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Adult Partial Approval - £21.00

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Saturday, 01 June 2019 9:30 AM - 5:30 PM [GST]

BVSC, The Centre for Voluntary Action, 138, Birmingham, England, B5 6DR, United Kingdom.

This is a day especially for people interested in and affected by aniridia.


Come to hear from experts in medicine, education and life with aniridia. Meet new people who are in the same situation as you or have been there previously.

Deadline to buy tickets is 11.45pm on Sunday 19 May

If you will need a carer to accompany you, contact us at

How to get there

Written and photographic instructions for how to walk from Birmingham New Street Station to the venue.

If you need a sighted guide from a transport hub, contact us to make arrangements.


We provide a creche for children under 12.

Social evening

Join us for the conference after-party at a family-friendly nearby hotel bar. Make new friends, relax and buy your own drinks and food. We can later help you get back to the station whenever you are ready to leave

Event code of conduct

All attendees, speakers, sponsors and volunteers expected to adhere to our code of conduct to create a safe environment for everybody.

Your data

Information gathered as part of this event will be managed according to our privacy and data protection policy.

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When discussing this event online, please mention Aniridia Network and use:

Aniridia Network

Aniridia Network is a support group and charity for people affected by aniridia: those who have it plus their family, carers, doctors, educators and other support givers.We want all these people to be hopeful, confident, supported and well informed regarding aniridia.

Contact the Organizer

Aniridia Network Trustees

We are volunteers elected by the members of Aniridia Network each year at its annual general meeting. Together we form the Trustee Board which is responsible for running Aniridia Network, making decisions about what the charity does in line with its governing document. Each trustee is also responsible for a set of activities and any volunteers involved with doing them.

About Martin,Katie,Emily,James,Eleanor

Aniridia Network Trustees
Dr Simon Hayhoe
PHD FBCS FHEA (Reader) Bath University

Simon is a reader in the Department of Education and admissions tutor for the MA Education. He is also a centre research associate in the Centre for the Philosophy of Natural and Social Science, London School of Economics. Simon’s current work focuses on inclusion, technology, museums and the arts for people with sensory impairments. He is currently involved in an international project investigating the use of mobile technologies as tools of inclusion for disabled people in museum environments.

About Dr Simon Hayhoe

PHD FBCS FHEA (Reader) Bath University
Eleanor Burke
Trustee Aniridia Network

Eleanor attended St Mary’s School for the Blind, in Dublin. She trained at the Royal National Institute of the Blind (RNIB), School of Physiotherapy and then worked in that profession at University College Hospital, London. She had a particular interest in the treatment of adults and children with neurological conditions including cerebral palsy.

About Eleanor Burke

Trustee Aniridia Network
Miriam Ibberson
Member Aniridia Network

Miriam was Born with Familiar Aniridia, attended mainstream school, in her early years, then on to University, trained in mental health, and to be a Social Worker. Her work included working with disadvantaged children. Losing her sight rapidly and eventually completely she embarked on a career in Customer Service. At the same time, Miriam was a disability officer, Equalities and health & safety Rep, fighting for the rights of those with disabilities and other challenges in the work place.

About Miriam Ibberson

Member Aniridia Network
Dr Ngozi Oluonye
Consultant Paediatrician Great, Ormond Street Hospital

Dr Ngozi Margaret Oluonye is a Consultant in Paediatric Neurodisability with expertise in the management of children with complex neurodevelopmental conditions including, Autism, ADHD, Developmental and Intellectual disability with specialisms in functional visual impairment.

About Dr Ngozi Oluonye

Consultant Paediatrician Great, Ormond Street Hospital
Glen Turner
Communications Officer Aniridia Network

I was born with aniridia and nystagmus, and went to a special school for the visually impaired. Since graduating from university, I have had a long career working for a local authority printing department. 2½ years ago I moved to London, and have been exploring many of the delights the city has to offer. I'm also a blogger, and regularly publish posts and videos about my experiences.

About Glen Turner

Communications Officer Aniridia Network
Clive Matthews
Special Educational Needs advisor

Clive is a special education needs advisor and advocate. He has drawn experience whilst specialising in visual impairment within hospital based child development centres, an independent residential special school, an independent residential special Further Education college, a local authority peripatetic visual impairment team and national charities supporting children, young people and their families. Clive is a qualified teacher and social worker. His hobbies include cooking and motorbikes.

About Clive Matthews

Special Educational Needs advisor

About Calibre Audio Library Sponsor Logo

09:30 AM


09:30 AM - 09:55 AMBVSC outside main conference hall
10:00 AM


10:00 AM - 10:10 AMMain Conference hall
10:10 AM

Developmental and health issues in children and young people with visual impairment

10:10 AM - 10:50 AMMain Conference Hall
  • Dr Ngozi Oluonye

    Consultant Paediatrician Great, Ormond Street Hospital

10:50 AM

Workshop - get to know

10:50 AM - 11:20 AMMain Conference Hall
11:20 AM

Annual General Meeting 2019 - Aniridia Network

11:20 AM - 12:00 AMmain Conference Hall
  • Martin,Katie,Emily,James,Eleanor

    Aniridia Network Trustees

12:00 PM

Lunch & Exhibition

12:00 PM - 01:00 PM
01:00 PM

Living with Aniridia

01:00 PM - 01:20 PMMain Conference Hall
  • Miriam Ibberson

    Member Aniridia Network

01:20 PM

Growing In Confidence With aniridia

01:20 PM - 01:40 PMMain Conference Hall
  • Glen Turner

    Communications Officer Aniridia Network

01:40 PM

Workshop - get to know

01:40 PM - 02:10 PMMain Conference Hall
02:10 PM

Meeting the unmet need

02:10 PM - 03:10 PMMain Conference Hall
  • Clive Matthews

    Special Educational Needs advisor


Patient discussion group

02:10 PM - 03:10 PMBreakout rooom
03:15 PM

Refreshments & Exhibition

03:15 PM - 03:45 PM
03:50 PM

Inclusive Technologies To Help People with Visual Impairments.

03:50 PM - 04:30 PMMain Conference Hall
  • Dr Simon Hayhoe

    PHD FBCS FHEA (Reader) Bath University

04:30 PM

Prize Draw (raffle)

04:30 PM - 04:50 PMMain Conference Hall
04:55 PM

My Baby Hasn't Opened Her Eyes

04:55 PM - 05:15 PMMain Conference Hall
  • Eleanor Burke

    Trustee Aniridia Network

05:15 PM


05:15 PM - 05:25 PMMain Conference Hall
05:45 PM

Evening Social

05:45 PM - 11:00 PMRadisson Blu, 12 Holloway Circus, Queensway B1 1BT
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